Motor neurone disease (MND) is a condition which affects the nerve cells, causing weakness in the muscles that gets worse and eventually leads to paralysis.
The facts are there is no cure.
Most people with MND die within two to three years of developing the condition, but some can live longer.
In July of this year Peter Kiel and Tavis Baker lost their friend and cycling buddy ‘Rob’ to MND.
In his honour and to raise funds and awareness of MND the pair is taking on a cycling challenge, something which is not new to either of them.
As we talked on Saturday, neither Tavis or Peter could disguise the emotion they are still feeling, it is too fresh, too raw but they determined.
So on August 31, starting at 8am from Europa Café on Sturt Street, Ballarat, Peter and Tavis will embark on 600km bike ride over a 24 hour period.
Both long-distance experience behind them – Tavis has three 24 hour rides behind him, raising funds for the Royal Children’s Hospital, while Peter rode from Perth to Ballarat to raise funds for MS.
“Rob was a good friend and riding buddy – we were known as the Myer Bunch and Rob was pretty much with us from day one,” Tavis said.
“He was a real down to earth sort of bloke and would do anything for anyone.
“Rob’s diagnosis was early January and it was a rapid decline. He was in a walker by March.it just blows your mind, really. Neale Daniher has been five years and he is still doing great things with his own MND charity, then you hear other stories, like Rob, who are 6 months.”
Tavis and Peter hope to raise $10,000, which will be donated to MND Victoria.
As well as the ride, a breakfast is being held on Saturday (August 17) at St Patrick’s College Pavilion.
The cost is $25 per person and is between 8.30am and 11.30am.
There is no need to book, just turn up for a hearty breakfast and support Peter and Tavis and MND Victoria.
“We like to think we will get 200 people there,” Peter said.
“Everyone is invited, just turn up. This (breakfast) has been made possible with the support of the Ballarat community, who has generously donated everything, so 100 per cent will go straight to MND Victoria.”
Tavis added the route for the ride would include Cuthberts Road and across to Windermere, include some laps around Learmonth – the pair belong to the Eureka Veteran Club, which has its clubrooms in Learmonth – a few laps of Lake Wendouree will be included before ending their ride back at Europa 24 hours later.
Peter and Tavis welcome anybody who would like to join them at any stage of their ride.
“Most of the bike community know about the ride so we hope they will come out and share the load. Rob was one of Tavis’ riders when he did the 24 hour rides and he would come out any old time to ride with him around Lake Wendouree,” Peter added.
“At the moment there is just nothing available as far as cure. MND Victoria statistics are there are only 300 people in Victoria with MND because they just don’t last.
“The catch cry is ‘until there’s a cure, there’s care’.”
‘So with your help, with each turn of our pedals, we will be that much closer to a cure.’
For those wishing to donate go to www.mycause.com.au/page/206744/robs-team
YOU ARE INVITED. . .
ST PATRICKS COLLEGE PAVILLION
Saturday August 17th 2019,
$25.00 per person
Until there’s a cure … there’s care
For more information
Contact Peter Kiel 0427 816 801 or Tavis Baker 0448 547 610
OR Donate www.mycause.com.au/page/206744/robs-team